“If she could, she would eat everything. I’m always worried about what she’ll try to eat next. Everything goes to her mouth.
“Sometimes, I have to put my fingers in her mouth and hook the food out to stop her choking.
“You literally can’t take your eyes off her for a minute so our house never shuts down.”
According to the mum, as she gets older, her interest in normal food has drastically reduced and she only eats foods of a particular colour and texture - like potato waffles, fish fingers and chicken burgers.
Catherine said:
“It started with her picking up and eating small items of fluff and paper, any bits she could find from the floor.
“Then her cravings became more and more intense. We can’t have anything on the walls like displays or paintings because she’ll eat them.
“Lilly can’t do any drawing or crafts because Maddie will eat the pencils and paints.
“I literally have to hide anything dangerous. We have child locks but she’s very clever and susses them out.
“Yesterday she ate a whole pack of chalks when I wasn’t looking, but her favourites are Play-Doh, sand and dirt.”
“I can’t go anywhere with her - not even to a cafe or the supermarket," said Catherine.
“Our flat is so small, there isn’t space to even use the sensory equipment we have been funded which would really help Maddie.
“It’s hard because due to her condition she can’t go outside much either. She needs to be safe because of her complex needs so to have somewhere where she could have the space to play and Lilly could rest too, would be a dream come true.
“Nothing in our life is normal, every aspect is affected and it’s very tough on Lilly too.
“Every day is a struggle but she’s worth it. Maddie is such a character.
“I feel really lucky because she is so quirky and different. I love her so much.”
Source: UK Mirror
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